So, to update. More of my thoughts have been published by the CBC via their weekly e-newsletter. Check out part 1 and part 2 via the CBC.
But there’s more already! The NIH (National Institutes of Health – the organization behind the regulation and funding of U.S. federal scientific research) has published draft guidelines for ongoing stem cell research. This is their response to Obama’s commission back in March. These are only draft guidelines, so we’ve yet to see how the final draft will look, but…
Here they are.
I’m happy. All things considered, there appear to be significantly strong guides and boundaries for exactly what sort of stem cells may be used in therapeutic experiments.
Big Idea #1
Most importantly: Embryos created solely for the purpose of being destroyed in research is still out-of-bounds (this is the work of the “Dickey Wicker” if any of you are familiar with the unfortunate name, but not the actual work of the amendment).
Now, there will be backlash on this. There already is. Stanford researchers, Colorado representatives and Hollywood actors all hate this. This is a major disappointment for them. Simply proof that they are not willing to reach across divides and find ethically defensible means of doing therapeutic research with stem cells (adult, cord blood, induced pluripotent stem cells).
And we can expect the complaining to continue. Jennifer Lahl, national director of the CBC, mentioned to me yesterday at lunch that the pool made available by these guidelines still leaves researchers vying and competing for precious raw material to experiment on. That’s why they want to create them on their own (through human cloning – also known as somatic cell nuclear transfer – SCNT).
All the complaining, in the midst of getting a bunch more government money, just heightens my disgust that they want to take life into their own hands.
Big Idea #2
And that’s the not-surprising bad news. There is now more federal funding available for embryo-destructive research, and more lines of stem cells available to destroy. But! the silver lining: In order for researchers to obtain these embryos they need permission based on informed consent from the parents of the embryo.
I remember, these embryos are the leftovers from fertility treatments like in vitro fertilization (IVF). So, think of the 2nd through 8th octuplets. In a normal (whatever that means) IVF treatment, only one embryo is implanted and brought to pregnancy. The other embryos (created just to “make sure” that the customer gets the goods she’s purchasing) are not ever implanted. They just get frozen, and some are thawed for research. Others die in the thawing process.
(This should highlight some serious problems with IVF. It’s not as easy as, “they help infertile couples have babies” – there are very small members of the human community involved here, and their existence demands our respect.)
But now, the parents (the patrons of the fertility treatment) will have a say as to how their non-implanted embryos – their CHILDREN – will spend the rest of their lives.
The positive side of silver lining: Instead of the doctors and researchers and their wallets and budgets deciding the fate of the child, the choice is in the hands of parents.
The negative side of silver lining: The fate of the child – the choice for their life or death – the vocation of their existence! – is in the hands of the parents!
And so now, this should be worrisome to you, dear reader. We’re hardly even talking about the NIH guidelines anymore, but I’ll end with this. The stem cell debate may have more to do with issues of the family than we previously ever thought. Scientific and moral and political and cultural things may be more connected and interdependent than we thought.
But remember, these are just draft guidelines – we’ll see what’s in the final. Will Marty McFly get his way? (Oprah’s Doc says no.)